The Facial Pain Association (FPA), formerly known as the Trigeminal Neuralgia Association (TNA), is a registered non-profit, 501(c)(3) volunteer organization, founded in 1990 by a team of people who were profoundly grateful for recovery from years of disabling facial pain.
The FPA is volunteer led and community focused.
The FPA is the largest patient organization supporting all people affected by neuropathic facial pain, leading the world in resources for information and healthcare guidance. Through programs of education, personal support, and advocacy efforts, FPA supports patients, their loved ones and caregivers, and healthcare professionals who diagnose and treat people affected by facial pain.
Guiding the FPA is a volunteer Board of Directors and a Medical Advisory Board which is composed of experts in neurosurgery, neuroscience, pain management, and dentistry.
To serve those with neuropathic facial pain, including trigeminal neuralgia, through support, education, and advocacy.
To be the most reliable and comprehensive resource on facial pain conditions for patients, their families, and healthcare professionals.
Allison has been working in the nonprofit sector since 2004. She holds a degree in Education from Emory University and returned to school in 2013 to earn a Master in Public Administration degree from the University of Georgia. Allison has worked in many areas of nonprofits including governance, fundraising, training, event planning, public policy, volunteer management and programming.
Nancy has owned and operated several successful businesses in Florida. As an independent business owner she honed her business and finance skills. Nancy works directly with the CEO; she oversees daily operations, maintains financial and business documents and coordinates FPA conferences and exhibits.
Regina has more than 15 years experience working with volunteers, donors, and databases in the nonprofit sector. She holds a Master in Public Administration from Drake University. Regina brings her compassion and organization skills to the volunteer effort for FPA. She also keeps track of our constituents and generous donors.
Brandi is a communications professional with a diverse background in corporate, small business, and non-profit marketing. She holds a Bachelor’s Degree in Political Science with a Minor in Communication Studies from West Virginia University. As a member of the facial pain community, Brandi strives to support, educate, and advocate for all people living with neuropathic facial pain.
Natalie is a recent graduate from Clemson University. She studied English with an emphasis in Writing and Publication Studies and a minor in Writing for News Media. In the past, she has coordinated programs for student housing facilities, churches, nonprofits, and university affairs. As our programs coordinator, she strives to make our services accessible and engaging for all who desire support in living with facial pain.
David is the retired CEO of Microban International. After managing his trigeminal neuralgia (TN) pain with medications for 5 years, he had a successful microvascular decompression procedure (MVD) in 2013. He brings 30+ years of business leadership experience and 20+ years of nonprofit board experience to his role. He and his wife, Jody, have four adult children and they live primarily in Charlotte, NC. David is also a Park Ranger Naturalist Guide (volunteer) at Red Rock State Park in Sedona, AZ.
Anne is a retired senior fellow from Mathematica where she specialized in health and economic policy. Her mother and grandmother had trigeminal neuralgia. Anne has seen treatment evolve from the ineffective alcohol injections her grandmother used to the high-tech MRIs, MVDs, and Gamma knife that alleviated her pain. She serves on the NJ Commission on National and Community Service and the Womanspace Advisory Counsel. She is a domestic violence victim advocate and therapy dog handler. Anne lives in East Windsor, NJ with her husband John. They have two sons and three delightful grandchildren.
Melissa is head of Media Relations for Bank of America Global Research. She was diagnosed with trigeminal neuralgia at age 35 and, after trying to manage her pain with medication for fourteen months, had what she considers to be a successful MVD in May of 2014. She served on our Young Patients Committee for several years before joining the Board of Directors in 2018. She holds master’s degrees in performing arts administration and human resources / organizational change management. Melissa lives in Southern California with her furry four-legged children.
Steve is President and CEO of The Well Spring Group, a non-profit aging services provider based in Greensboro, NC. Steve is immediate past Chair of the Board of Leading Age, the nation’s largest aging services provider association and has held positions on numerous governmental, professional, civic and faith-based boards. Steve developed TN in 2009 and had MVD surgery in 2015. Steve currently manages his recurrent TN with medication. Steve had a 15-year stint as a college football official, and today enjoys golf, hiking and time in the garden. Steve and his wife, Anne – a public school teacher, have two adult daughters.
Megan is a retired corporate human resource professional and is now an online Trigeminal Neuralgia group leader, and homeschooling mom. Megan’s older daughter, KatieRose, developed Trigeminal and Geniculate neuralgia in 2012, at 11 years old. KatieRose’s near daily TN & GN attacks were barely managed with anticonvulsants, leading to MVDs in 2012 and 2014. Since 2014, KatieRose has been pain free, and Megan has been the lead administrator of an online group for parents of over 100 kids with Trigeminal Neuralgia and similar facial pain conditions. Megan, her husband, Scott, and two daughters, KatieRose and Lydia, reside in Northern Virginia.
Eric is an attorney and litigator. Since 1988, he has represented numerous clients in the state and federal courts of New York and New Jersey in a broad spectrum of matters. He and his wife, Ellen, have two adult children and a large mutt. Eric is also a certified EMT and has been a member of his New Jersey community’s volunteer first aid squad since 2006. Eric suffered his first episode of TN in the mid-1990s and has received surgical and medical treatment for the condition. For over 15 years, his TN has largely been controlled by medication.
John is the recently retired President of Cambridge International Partners, a boutique investment bank that provides mergers and acquisition advisory services to the investment management industry. John was born and educated in the UK, graduating from Cambridge University as a natural scientist before emigrating to New York in 1978 to work in the oil and gas industry. In the last ten years, he has suffered numerous episodes of TN which he manages with anticonvulsant medication. John and his wife, Lilia, have four children, four grandchildren, a Norfolk terrier and live in Stamford, Connecticut.
Jeff is the Founder and President of Bodington & Company, investment bankers to the electric power industry, he is also a Director of several electric industry corporations. The searing pain of trigeminal neuralgia led Jeff to contact the FPA for help, he managed his pain with medications for six years and later had a successful MVD. Jeff joined the Board of the FPA and served as Chairman for seven years. Jeff and his wife, Cecile, live in San Francisco and have two adult sons.
Dr. Babu is a neurosurgeon affiliated with Lenox Hill and a number of other leading hospitals in New York, NY. He was initially educated and trained in India and then starting in 1985 he received further training at the NYU Medical Center and then later with Dr. Peter Janetta, the pioneer of microvascular decompression surgery. He also completed a fellowship in Hannover, Germany under Professor Samii, the father of skull base surgery. His interest is atypical facial pain. Dr. Babu and his wife have twin daughters and a son, and they reside in Westchester, NY.
Dr. Fogel is a retired Pediatrician. After being in practice for more than 25 years, his TN-related pain and medication-related side effects forced him to retire. However, he moved into the mode of helping others with his condition by becoming FPA’s Support Group Leader and Outreach Coordinator for the Philadelphia area. He helped craft Pennsylvania’s Medical Marijuana legislation and has made multiple presentations on the topic. For more than 30 years he has been an active firefighter in his community’s volunteer fire department, and is the former president. Dr. Fogel and his wife have two adult sons and one granddaughter.
Ally is a Special Education Teacher and Board Certified Behavior Analyst. She holds a Masters Degree in Early Childhood Education. Ally has had bilateral facial pain since she was 13 years old. Since her diagnosis, she has been involved with the FPA. Ally was one of the founding members of the Young Patients Committee and served as chairperson of the YPC for several years. She has had multiple surgeries that now allow her to manage her pain with anticonvulsant medications. Ally resides in Washington, New Jersey with her husband, Dan and their dog, Tucker.
Neurosurgery Director, Cyberknife Program
Winthrop University Hospital
University of Cincinnati Neuroscience Institute
Associate Professor of Neurological Surgery Director of Neurosurgery Cranial Nerve Clinic
University of California, Irvine
Professor and Associate Chair for Education, Department of Neurosurgery at Dell Medical School Ascension at the University of Texas, Austin
Chief of Neurosurgery
Oakwood Southshore Hospital
Professor and Vice Chairman of Strategic Development and
Innovation, Dept. of Neurosurgery Stanford University School of Medicine
Associate Professor, Diagnostic Sciences
LSUHSC School of Dentistry
Professor and Chairman of Neurosurgery
Stanford University School of Medicine
Director TMD and Orofacial Pain
University of Minnesota
Chair, Dept. of Neuroscience & Experimental Therapeutics Professor of Neurosurgery Neuroscience and Experimental Therapeutics Albany Medical Center
Assistant Professor of Neurological Surgery
Director of Cranial Nerve Disorders Program
University of Pittsburgh Medical Center
Professor, Stereotactic and Functional Neurosurgery
University of Illinois College of Medicine
Director, Craniofacial Surgery, Chief Oral Maxillofacial Surgery and Dentistry Yale University
David W. Cahill Professor and Chair, Department of Neurosurgery and Brain Repair
University of South Florida Health
Professor of Neurosurgery
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