Meet the Young Patients Committee

Meet the YPC! With the launch of the new FPA website, logo, and branding, we thought it best to reintroduce ourselves. We are the Young Patients Committee, a committee designed to advocate for people with facial pain under the age of 40.

Our primary goal is to make sure that no one ever feels alone in their diagnosis. From our new monthly support group, to supporting young patients at facial pain events, to everything in between, we are here for you.

On the new FPA website, we will have our own page that has links to all of our social media accounts and articles our board members have written through the years to make the world of chronic pain more manageable. Make sure to follow us on Instagram, Facebook, and Twitter! We also have an Etsy store with tons of items that help to start the conversation about trigeminal neuralgia. After all, awareness starts with one conversation about a cute teal ribbon decal!

Our email account and social media accounts are always open for conversations and questions. Feel free to send us a message if you need some extra love. Always remember that you are never alone. Each of our board members have experienced different paths since our diagnosis, so we’re always here to help you through what you’re experiencing. Even though no two diagnoses are the same, if we have each other, we can get through anything.

Take our quiz below to get to know us. Make sure to track your answers to see which one of us you’re the most like!

If you’ve known about us for a while, we’re glad you’re here! And if you’re just being introduced to us now, welcome to the family!

All our love and support,
Steph (Chairwoman), Emmy, Lindsey, Meredith, Kenzie, and Rachel
[email protected]

Which YPC member are you? Take our quiz to find out!

What’s your favorite color?
A. Orange
B. Yellow
C. Purple
D. Yellow or earth tones
E. Blue
F. Green

Go-to movie?
A. Any comedy with Paul Rudd
B. Sweet Home Alabama
C. Titanic
D. Harry Potter
E. Moana
F. Mary Poppins

Favorite activity to do when you aren’t in pain?
A. Riding a rollercoaster
B. Play with my kiddos
C. Enjoy nature and be with friends
D. Be outdoors with wildlife
E. DIY crafts
F. Play outside with my dogs

What do you do to relax?
A. Make Excel spreadsheets for fun
B. Watch TV
C. Watch movies
D. Snuggle under a blanket with coffee and a book
E. Sit under a heated blanket
F. Crafting or gardening

Favorite day of the week?
A. Wednesday-hump day
B. Saturday
C. Depends on the week
D. Each day has a new beginning
E. Sunday
F. Thursday

Favorite book?
A. The Sound and the Fury
B. Motivational or cookbooks
C. When Breath Becomes Air
D. To Kill a Mockingbird & Harry Potter
E. Courage to Soar
F. I don’t like to read books

What do you do when you first wake up in the morning?
A. Check my email
B. (Cuss at my hubby)…wake up my kids
C. Brush my teeth and wash my face
D. Take meds and drink espresso
E. Make coffee
F. Let the dogs out

What are you binging on TV?
A. Brooklyn 99
B. The Blacklist
C. I don’t have time to binge
D. Documentaries
E. Good Doctor
F. New Girl

Dream vacation spot?
A. Kingdom of Tonga (whales!)
B. Anywhere warm!
C. Any vacation is a dream!
D. Kenyan Savanna (elephants & giraffes!)
E. Jamaica!
F. Aruba!

Favorite snack?
A. Almonds
B. Laffy Taffy
C. Cheez-its
D. Anything coffee
E. Popcorn
F. Doritos or chips

Top row, from left to right: Kenzie, Rachel, Lindsey.
Bottom row, from left to right: Meredith, Emmy, Steph.

Don’t cheat!! Answers below… tally up your choices!

Mostly A’s: You’re most like Kenzie! Kenzie lives in D.C. with her newly rescued pup, Captain. She’s all about living life to the fullest and going on new adventures with friends — as long as there is a down to the hour agenda made on excel before she packs! You’re kindhearted and ready to do anything, but definitely detail orientated!

Mostly B’s: You’re most like Meredith! Living in Texas with her hubby and two daughters, Meredith is teaching her daughters that understanding and compassion go a long way. You can find her searching for a new recipe or enjoying the sun, but only after she’s played with her kids! You’re selfless, but know that it’s important to balance the needs of others and yourself!

Mostly C’s: You’re most like Rachel! At medical school in Louisiana, Rachel is on her way to becoming a neurologist. The leader of our support group and resident teacher of all things new, Rachel is the epitome of what it means to choose a path of compassion! You’re a go-getter who loves to tell others fun facts and you’re on your way to making the world a better place!

Mostly D’s: You’re most like Emmy! Our U.K. board member, Emmy knows how to brighten anyone’s day with a message or photo. Her favorite place to be is out in nature and she always has a smile on her face while she does it! Your own goal of the day is to bring a smile to someone’s face, and trust us, you always succeed!

Mostly E’s: You’re most like Lindsey! A recent radiology technology graduate in Texas, Lindsey advocates for young patients on the pharmaceutical side of the world. The voice of reason and all things creative, Lindsey knows what it means to shoot for the stars in life! You know the value of work hard, play hard, rest hard, and you love to bring others along for the ride!

Mostly F’s: You’re most like Steph! Our chairwoman, Steph works tirelessly to make every young patient
feel supported and loved from Ohio. When she’s not spreading awareness, you can find Steph out in her garden or exploring a crafting store with her two dogs and husband in tow! You’re all about do-it-yourself activities and love to spread joy through gifts for friends!

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Learn more about neuropathic facial pain, including how to get a diagnosis, treatments, and more by viewing or downloading our free patient guide.

By filling out the form below, you will receive a free FPA Patient Guide and periodic updates on the management and treatment of facial pain conditions. We do not share this information with any outside sources.

By filling out the form below, you will receive a free FPA Patient Guide and periodic updates on the management and treatment of facial pain conditions. We do not share this information with any outside sources.