A patient registry is a collection of standardized information about a group of patients who share a condition. The information may be used for a variety of purposes such as conducting natural history studies and supporting disease specific clinical trial recruitment.
The purpose of the Facial Pain Registry is to bring the facial pain community together and collect data. By contributing their stories, participants play a crucial role in helping researchers, doctors, and policymakers gain deeper insights into the true impact of facial pain, ultimately paving the way for better outcomes.
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate on facial pain research.
Click here to download the FAQ
For more information, contact the registry staff at [email protected].
Drive Research
This is a unique facial pain patient registry. Are you interested in using our data to further your research?
For more information, contact the registry staff at [email protected].
Your participation in The Facial Pain Registry provides the opportunity to share your unique experience in the areas of diagnosis, symptoms, treatment, medications and more. Each person who participates in the registry contributes their personal experience to facial pain research. By sharing stories through data, you can help to inform the development of new treatment options and a better understanding of the disease.
Your participation is voluntary, and your information will be kept confidential.
The primary aim of the Facial Pain Registry is to conduct a prospectively planned and efficient natural history study that will lead to a better understanding of the disease and its course and pace over time. Other registry objectives include the following:
