The Facial Pain Association is the largest patient organization supporting all people affected by neuropathic facial pain, leading the world in resources for information and healthcare guidance. Through educational programs, one-on-one and group support opportunities, and our advocacy efforts, the FPA supports the facial pain community as well as healthcare professionals who diagnose and treat people affected by facial pain.
On February 28, the Facial Pain Association will join the global community in raising awareness about rare diseases. Launched in 2008, Rare Disease Day is a grassroots campaign led by people and patient organizations that bring together millions worldwide.
Rare diseases are serious, complex, usually chronic, often life-limiting, and most have no cure. The irony of rare diseases is that many people have them, and they share common experiences with the difficulties they face. People with rare diseases struggle to get appropriate diagnoses and care. There is usually a lack of research on rare diseases, especially those that are not fatal. Having a rare disease can be isolating for the nearly 300 million people living with one of the more than 6,000 identified rare diseases.
Throughout February, the FPA will be sharing facts about facial pain on social media. Please feel free to share our posts on your personal social media as we work to educate others about rare diseases.
On February 28, if you are ready, we invite you to share your #RareDiseaseDay story on your social media and tag the Facial Pain Association.
You can raise funds and awareness when you share your story. Create your own fundraising page to support the Facial Pain Association by clicking the link below.